CLOUD COMPUTING FORUM: A HIMSS EVENT
Orlando, FL - February 19, 2017
Richard Stroup has been the Director of Heart Center Informatics at Children’s Mercy Hospital Kansas City for fourteen years. He has more than 35 years of industry experience, including 20 years in Silicon Valley high-technology firms. Under his direction, the Children’s Mercy Heart Center Informatics Program has become a nationally recognized leader in clinical informatics and computer-based research and analysis. Richard holds two U.S. Patents associated with collecting, organizing, and presenting research-oriented medical information, and was a contributing author of the textbook “Pediatric and Congenital Cardiac Care Volume 1: Outcomes Analysis”. He has authored numerous papers in peer-reviewed publications and been an invited speaker at international conferences – including the World Congress of Pediatric Cardiology, American Medical Informatics Association, American College of Cardiology, and the Microsoft Global Exchange Conference.
Hypoplastic left heart syndrome (HLHS) is a complex malformation with the highest mortality rate among all congenital heart defects. Babies born with HLHS require three separate heart surgeries over a period of three years. The first surgery occurs at one week of age. After recovery, the infant is discharged home with their parents to await the second surgery, which occurs at six months.
This is known as the “first interstage” period. At any time, there are up to 2,000 HLHS infants at home during the first interstage period in the United States, and approximately 10 to 20% of these high-risk infants expire at home during this period.
In 2014, Children’s Mercy Hospital developed a scalable cloud-based multi-facility solution for managing these fragile infants. During that time, 68 patient families used the solution with no mortalities. Historical data suggests six to 12 mortalities for a comparable population and timeframe.
Children’s approach provides for a much more rapid response to changes in physiologic status, and it’s cloud-based infrastructure combines real-time remote patient monitoring and alert analytics with on-demand registry capabilities.