CLOUD COMPUTING FORUM: A HIMSS EVENT
Orlando, FL - February 19, 2017
Hypoplastic left heart syndrome (HLHS) is a complex malformation with the highest mortality rate among all congenital heart defects. Babies born with HLHS require three separate heart surgeries over a period of three years. The first surgery occurs at one week of age. After recovery, the infant is discharged home with their parents to await the second surgery, which occurs at six months.
This is known as the “first interstage” period. At any time, there are up to 2,000 HLHS infants at home during the first interstage period in the United States, and approximately 10 to 20% of these high-risk infants expire at home during this period.
In 2014, Children’s Mercy Hospital developed a scalable cloud-based multi-facility solution for managing these fragile infants. During that time, 68 patient families used the solution with no mortalities. Historical data suggests six to 12 mortalities for a comparable population and timeframe.
Children’s approach provides for a much more rapid response to changes in physiologic status, and it’s cloud-based infrastructure combines real-time remote patient monitoring and alert analytics with on-demand registry capabilities.