Orlando, FL
Feb. 19, 2017

Cloud-Based Multi Facility Remote Patient Monitoring of High-Risk Infants

February 19, 2017
10:55am - 11:25am
Plaza International DEF Ballroom

Hypoplastic left heart syndrome (HLHS) is a complex malformation with the highest mortality rate among all congenital heart defects.  Babies born with HLHS require three separate heart surgeries over a period of three years.  The first surgery occurs at one week of age.  After recovery, the infant is discharged home with their parents to await the second surgery, which occurs at six months. 

This is known as the “first interstage” period.  At any time, there are up to 2,000 HLHS infants at home during the first interstage period in the United States, and approximately 10 to 20% of these high-risk infants expire at home during this period.

In 2014, Children’s Mercy Hospital developed a scalable cloud-based multi-facility solution for managing these fragile infants. During that time, 68 patient families used the solution with no mortalities. Historical data suggests six to 12 mortalities for a comparable population and timeframe.

Children’s approach provides for a much more rapid response to changes in physiologic status, and it’s cloud-based infrastructure combines real-time remote patient monitoring and alert analytics with on-demand registry capabilities.


  • Understand regulatory, legal, and compliance considerations associated with the project.
  • Security and encryption strategy used in the multi-facility HIPAA compliant cloud-based solution.
  • Quantifying the costs, savings, and return on investment of the project.


Richard Stroup

Director of Informatics, Health Center
Children’s Mercy Hospital, Kansas City

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